I figured it's seriously time to update this blog. It really has been a while. Luckily, not much has happened with Charlie. A few months back we got the go ahead to take him off his antibiotics. But, about 2 weeks after that he got a fever so we put him back on them. Fortunately, his labs were good and no cholangitis. Then mid April we tried again to take him off the antibiotic but after missing only 2 doses he started getting sick but no fever. And, as luck would have it, I was in the hospital in labor at the time:) So, even though he didn't have a fever, we started him up on the septra again. Turns out, it was just a normal cold that all the other kids got as well.
For the time being we're keeping him on both meds for a bit.