Well, Charlie is doing FANTASTIC!!!!! We are soooooo happy! His last appointment with Dr. Book was last month and went wonderful. There is a chance that he may never even need a transplant. Wouldn't that be awesome? Also, his labs looked much better. Liver enzymes were about the same, ALT 51 and AST 94, and vitamin D level was normal at 37. And the most shocking was his ggt level, which had been as high as 2600, is now at 80!
Thanks so much for all the thoughts and prayers!!!! Here is a few latest pics...
Nice to hear that things are going better for your little one. I was looking through your Campbell Clan blog and had to laugh at the Christmas pajamas our kids wear them most of the year, it's funny to see other kids in them.
ReplyDeleteWhat a beautiful boy!
ReplyDeleteHope you don't mind I was just doing some google searches and found Charlie's blog. Our daughter is in Primary Children's right now. She just got moved out of PICU this afternoon. I enjoyed reading though, that is interesting that it is common in asians and girls. She is a 1/4 chinese so i guess a better chance.
ReplyDeleteOur blog is utahlais.blogspot.com or email douglai@gmail.com
Thanks...
My husband has already posted on your blog, but I just wanted to thank you. Lately all I have read about biliary atresia outcomes has been so negative. It is nice to see pictures of happy children getting better. It is also nice to know that the same dr's that have helped your little boy are helping my daughter.
ReplyDelete