Still doing great

Well, I seriously feel like the luckiest mom alive... We have been so blessed to have Charlie so healthy. He had another checkup at the liver clinic and no surprise, he's doing great. We'll get labs done in about a week. Also, he gets to drop one of his medications finally:) So, the only med he'll be on is actigall, which helps with bile flow.

Here's a few cute pics of my boy...

July 25, 2008

Charlie is doing wonderful. We are now at almost a year post-Kasai! Yea! It was the end of August last year that he was diagnosed. Nick and I just want to thank everyone for all the help you've given us. We have been so blessed to have you in our lives...

Nick and I just came in contact with another family whose little girl has biliary atresia. She has just had the Kasai surgery and is back home now. Please remember to keep this family in your prayers.

Here's some of the lastest Charlie pics...

Sorry it's been so long...

Well, Charlie is doing FANTASTIC!!!!! We are soooooo happy! His last appointment with Dr. Book was last month and went wonderful. There is a chance that he may never even need a transplant. Wouldn't that be awesome? Also, his labs looked much better. Liver enzymes were about the same, ALT 51 and AST 94, and vitamin D level was normal at 37. And the most shocking was his ggt level, which had been as high as 2600, is now at 80!

Thanks so much for all the thoughts and prayers!!!! Here is a few latest pics...

Chuckles

Lately, Nick has been calling Charlie "Chuckles". We think it's a great new nickname! He has been

doing really well lately. No liver problems at all!! He got croup a few weeks ago but got over it in no time. Here's some of his latest pics...